"The use of registries and registry data in general can be a valuable tool in helping to understand the causes of diseases and disorders, but in this case, the lack of clarity around how data will ...

“Even data resources ... new disease registry to track Americans with autism will reportedly be incorporated, according to CBS News. The NIH had previously launched the National Database for ...

Instead of a traditional registry, a real-world data platform will be established ... Institutes of Health would create a medical records database. “The National Institutes of Health (NIH ...

The Trump administration still will pursue large-scale data collection, but without the registry that drew the ... s intentions in creating the database. Kristyn Roth, a spokeswoman for the ...

Operatives from Elon Musk’s so-called Department of Government Efficiency (DOGE) are building a master database ... real-time” data about people self-deporting. Plus: A US judge rules against ...

Source: Agency documents assembled by The New York Times These intimate details about the personal lives of people who live in the United States are held in disconnected data systems across the ...

Travis Gettys is a senior editor for Raw Story based in northern Kentucky. He previously worked as a web editor for WLWT-TV and a contributing writer for the Kentucky Enquirer, and he also wrote ...

The wiring diagram and its data, freely available through the MICrONS Explorer, are 1.6 petabytes in size (equivalent to 22 years of non-stop HD video), and offer never-before-seen insight into ...

The NIH is also now in talks with the Centers for Medicare and Medicaid Services to broaden agreements governing access to their data, Bhattacharya said. In addition, a new disease registry is ...